I’m thinking of opening an Etsy store, here’s some of my work so far.
it’s been a while since i’ve posted a lot about my health
so here’s the deal
i upped the dosage of hydroxychlorique (plaquenil) almost three months ago now and i’ve felt no change. if anything, my hair has been thinning more dramatically but i’ve experienced no physical benefits or increase in quality of life..
so my next step would be methotrexate, but i’m anxious and my rheumie seems to be very anxious about going to a DMARD as well. from what i understand it requires regular blood work which i currently can’t afford, so i’d have to wait until i get health insurance to start this drug anyway but a part of me wonders if the drug is worth it.
i mean, i could just stop trying to treat it and lived my life disabled with a pain management routine. maybe that’s better than depending on something so toxic for life? I don’t know. it’s such an impossible decision to make and I can’t make it until i have health insurance anyway I guess?
i don’t know. I’m just out of options. any advice from anyone who’s had experience with methotrexate for lupus? any advice at all?
Pictures from my fantastic weekend in Virginia. I had the best time away with my boyfriend, and some of the best food ever.
Books to read or give at Christmastime!
“All of the experiences in this comic are either directly from my own life or related to me by people I know and care for.
I don’t know, I’m all mad today. In the elevator in my building a woman decided she had an opinion about something I was wearing around my neck and grabbed it so she could tell me what she thought, and got mad when I told her to fuck off. I’m on the subway and a stranger wants to touch my hair. Every time I fuck someone or love someone, 0r change my body or decide whether or not to wear make-up or talk about the people I love, I prepare for the cascade of opinions or tirades or thinly-veiled self-congratulatory tolerance and it’s easier now to just not share, to hold those precious things private.
I’m tired of my body and my life being public property, of my identity and choices being used by others for leverage, at that entitled hurt or anger in their eyes when I don’t want to play along. I’m tired of seeing the people around me get manoeuvred or manhandled or held up like fucking pariahs when they just want to be left in peace. I’m bored of being someone else’s politics. I don’t want to talk – I’m just reading my book while I’m on my way home”
From the comic Robot Hugs